Design and Development of the Institutional Registry of Pulmonary Hypertension in Fundacion Valle del Lili, a University Hospital of Reference in Latin America

Abstract

In the present, the epidemiologic characteristics of Pulmonary Hypertension (PH) are not completely defined, since regional differences exist conditioned by genetic, geographical, environmental and socioeconomic factors that determine the clinical behavior and prognosis of patients with PH. Objective: To elaborate an institutional registry of HP in Fundación Valle de Lili (FVL) within the framework of PH Clinic including cases belonging to group 1 and 4 characterizing the presentation, impact and the natural history of disease, serving this as a support for the development of a regional registry in the future.